BMD Hub website launch!

On the 29th of February, in celebration of Rare Disease Day, the BMD Hub has been launched.

Modelled after the successful DMD Hub, a collaboration between Duchenne UK and Newcastle University, the BMD Hub’s goal is to enhance clinical trial readiness in BMD (Becker Muscular Dystrophy) by supporting sites, addressing specific industry needs, linking with the patient community, and promoting more equitable access to clinical research for patients with BMD.

Central to this effort is the establishment of the BMD Hub Central Recruitment Database, a centrally coordinated national recruitment contact database, collecting information from and about people with BMD and their preferences for potential participation in research studies in the UK.

Additionally, through the creation of a network, the BMD Hub aims to bridge educational gaps among healthcare professionals, patients, and families. The BMD Hub website will serve as a valuable resource in achieving this objective.

The BMD Hub will be introduced through a webinar on the 6th March 2024, at 5 pm for health care professional and pharmaceutical industry communities, and at 6 pm for patients and their families.

This is a project coordinated by the John Walton Muscular Dystrophy Research Centre at Newcastle University, funded by Edgewise Therapeutics, and collaborating with UK patient organisations with an interest in dystrophinopathies.

Here are the links to register to the webinars:

(please only register to the webinar relevant to you)

5-6pm (GMT): Healthcare professionals and industry community: https://forms.office.com/e/MHfMfhrNWE

6-7pm (GMT): Patients, Carers and their families: https://forms.office.com/e/pPP41j6s99