Workshops on aspects of care for people with Duchenne Muscular Dystrophy (DMD)
Live online workshops for Healthcare Professionals on aspects of care for people with Duchenne Muscular Dystrophy (DMD)
28th March 2025, 9am-11am, online
DMD Care UK is running peer-to-peer online learning workshops in different aspects of care for Duchenne muscular dystrophy as part of their recently launched DECRI programme (Duchenne Education in Care & Research Initiative).
Each workshop will be just under an hour long and you can register for up to two.
Registration links and more details (including learning objectives) can be found below. If you would like to attend, you can select one from Group 1 (9:00am) and one from Group 2 (10:05am).
Please do share as widely as you can - we welcome registrations from healthcare providers across the UK and across disciplines.
Sessions will also be recorded and made available after the event.
If you have questions, please contact DMD Care UK’s Project Manager, Cathy Turner ([email protected])
GROUP 1 Please select one option | Respiratory management in DMD - ventilation and airway clearance Ben Messer • Gain knowledge of respiratory involvement in DMD paediatrics through to adults • Develop awareness ventilation and airway clearance strategies • Consolidate knowledge of acute admission pathways | Managing the foot and ankle complex through the lifetime of a person with DMD Anna Mayhew, Dionne Moat, and Mel Dixon • Early signs and symptoms of contracture development and understand the importance of early intervention. • The use of orthotic devices to reduce contractures. • Collaboration for improved contracture management. | Osteoporosis - how to recognise vertebral fracture, managing bisphosphonates side effects and transition into adult care Nicola Crabtree and Jarod Wong • Long-term effects of osteoporosis and vertebral fractures on physical health, mobility and overall disease progression • Clinical signs of vertebral fractures in DMD and the role of bisphosphonates |
GROUP 2 Please select one option | Delayed puberty in DMD Claire Wood • Cause and impact of delayed puberty in DMD • Assessment and treatment of delayed puberty in DMD | Cardiac Monitoring and Intervention in DMD John Bourke and Kadhim Kadhim • Cause and progressive cascade underlying heart involvement in DMD • Clinically important left ventricular dysfunction occurs in all boys/men with DMD, justifying early, prophylactic deployment of drug therapies • Late introduction of heart medications cannot compensate for what was not done in a timely way (the importance of synchronising paediatric and adult practice) | Long Bone Fractures Roger Walton and Meredith James • Appropriate management of acute long bone fractures in DMD, pain management and why surgical treatment may be beneficial • How to advocate for their patients in an emergency admission for a suspected fracture |
DMD Care UK is a collaborative initiative between the John Walton Muscular Dystrophy Research Centre at Newcastle University and Duchenne UK, embedded in the UK North Star Network. It is funded by Duchenne UK, Duchenne Research Fund and Joining Jack.
Author(s)
Cathy Turner