Meet the Networking Strand

The John Walton Muscular Dystrophy Research Centre is structured around four important strands of activity – clinical care & diagnostics, clinical research, basic research and networking & collaborations – but all are strongly interlinked and the work across these teams is key to our success and impact in the neuromuscular field.

Anando Sen

C4C Data Scientist

Networking

Annemieke Aartsma-Rus

Professor of Translational Genetics

Networking

Avril Palmeri

C4C Data Officer

Networking

Becca Leary

C4C Project Manager

Networking

Cathy Turner

DMD-Care Project Manager & TACT Coordinator

Networking

Chiara Marini Bettolo

Consultant Neurologist

Clinical Care
Clinical Research
Networking

Emma Heslop

DMD Hub Manager

Networking

Helen Walker

Registry Project Manager

Networking

Holly Borland

Administration Support

Networking
Clinical Research

Jess Elliot

BMD Hub Project Assistant

Networking

Jessie Trueman

C4C Project Assistant

Networking

Joanne Lee

C4C Education Coordinator

Networking

John Dawson

Web Development & Communications Manager

Networking

Julie Bohill

Registry Project Manager

Networking

Lindsay Murphy

Registry Project Manager

Networking

Megan McNiff

Research Associate: Patient Preference

Networking

Michela Guglieri

Professor of Neuromuscular Disorders

Clinical Research
Clinical Care
Networking

Phil Cammish

DMD Hub Central Recruitment Manager

Networking

Sam McDonald

Registry Project Manager

Networking

Vicky Hedley

Rare Disease Policy Manager

Networking

Volker Straub

Harold Macmillan Professor of Medicine

Basic Research
Clinical Care
Clinical Research
Networking