Contact the Patient Registries Team
Patient Registries:
Myotonic dystrophy (DM)
MyotonicDystrophyRegistry@newcastle.ac.uk
Facioscapulohumeral dystrophy (FSHD)
FSHDRegistry@newcastle.ac.uk
Spinal Muscular Atrophy (SMA)
SMARegistry@newcastle.ac.uk
Myotubular and Centronuclear Myopathy (MTM & CNM)
mtmcnmregistry@newcastle.ac.uk
COL6-related dystrophies
collagen6registry@newcastle.ac.uk
Fukutin Related Protein gene (FKRP)
fkrpregistry@newcastle.ac.uk
Registry Team
Registries@newcastle.ac.ukRegistry Managers:
Helen Walker
FSHD & DM Registry Manager
Networking
Julie Bohill
MTM-CNM Registry Manager
Networking
Sam McDonald
FKRP and Col-6 Registry Manager
Networking
Registry Data Coordinators:
Aleks Carver
Data Coordinator
Clinical Research
Networking
Lucy Hickson
Registry Data Coordinator
Networking
Postal address:
John Walton Muscular Dystrophy Research Centre
Translational and Clinical Research Institute
Faculty of Medical Sciences
Newcastle University
International Centre for Life
Newcastle upon Tyne
NE1 4EP
Phone:
+44 (0)191 241 8640